Collaborate2Cure: The State of Rare Disease

Thursday Jan 26 / 3:00 PM (CDT) - Thursday Jan 26 / 5:00 PM (CDT)

Childrens Mercy Research Institute
2401 Gillham Rd.
Kansas City, MO

Collaborate2Cure: The State of Rare Disease
*This event will be offered in person and also live streamed virtually.

The State of Rare Disease
January 26, 2023
3:00 – 5:00 PM
Children’s Mercy Research Institute, 2401 Gillham Rd, Kansas City, MO -OR- Virtual


  • Networking | Refreshments
  • Program | State of Rare Disease in the KC Region
    • Welcome, Series Overview and Deliverables
    • Presentations: Current state of rare disease
      • Pediatric
        • Tom Curran, PhD, Executive Director and CSO, Children’s Mercy Research Institute
      • Adult
        • Steven Stites, MD, Vice Chancellor Clinical Affairs, University of Kansas Medical Center
      • Pharmacy
      • Patient
        • Kevin Wake, Patient Advocate, Uriel E. Owens Sickle Cell Disease Association of the Midwest
      • Panel discussion
        • Moderator: Kelly Ranallo, Founder, RareKC
          • Where are the gaps?
          • Where do we go from here?
  • Networking | Refreshments

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