Collaborate2Cure: Big Data Applications in Rare Disease

Thursday Aug 3 / 11:30 AM (CDT) - Thursday Aug 3 / 1:30 PM (CDT)

KU Clinical Research Center
4350 Shawnee Mission Parkway
Fairway, KS

Lunch will be provided for in person attendees.


11:30a-11:45a: Check in and Networking (in-person attendees only)

11:45 AM | Program

  • Welcome
    • Mario Castro, MD, MPH, Chief, Pulmonary, Critical Care and Sleep Medicine, Vice Chair for Clinical and Translational Research, Director, Rainbow Clinical Trials Science Unit, University of Kansas Medical Center
    • J. Steven Leeder, PharmD, PhD, Marion Merrell Dow Endowed Chair in Pediatric Precision Therapeutics, Children’s Mercy Kansas City, Associate Chair for Research, Department of Pediatrics, Deputy Director, Children’s Mercy Research Institute
    • Dennis Ridenour, President & CEO, BioNexus KC
  • Panel Discussion
    • Moderator: Nancy Peterson, Ability KC, and Rare Disease Advocate and Parent
    • Isabelle Thiffault, PhD, Director of Translational Genomics – Genomic Medicine Center, Children’s Mercy
    • Vanessa Vogel-Farley, Research and Data Governance Lead, Global Genes and RareX
    • Jeffrey Thompson, PhD, Chief Research Informatics Officer, University of Kansas Medical Center
    • David Voccola,
  • Closing Comments
    • Jay Vivian, PhD, Program Lead Rare Disease Model Research Program, Children’s Mercy Research Institute
1:00 PM | Networking



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