Collaborate2Cure: Big Data Applications in Rare Disease

Lunch will be provided for in person attendees.

Agenda
11:30a-11:45a: Check in and Networking (in-person attendees only)

11:45 AM | Program

• Welcome
  • Mario Castro, MD, MPH, Chief, Pulmonary, Critical Care and Sleep Medicine, Vice Chair for Clinical and Translational Research, Director, Rainbow Clinical Trials Science Unit, University of Kansas Medical Center
  • J. Steven Leeder, PharmD, PhD, Marion Merrell Dow Endowed Chair in Pediatric Precision Therapeutics, Children’s Mercy Kansas City, Associate Chair for Research, Department of Pediatrics, Deputy Director, Children’s Mercy Research Institute
  • Dennis Ridenour, President & CEO, BioNexus KC
• Panel Discussion
  • Moderator: Nancy Peterson, Medical Marketer & Community Liaison, Ability KC, and Rare Disease Advocate and Parent
  • Isabelle Thiffault, PhD, Director of Translational Genomics – Genomic Medicine Center, Children’s Mercy
  • Vanessa Vogel-Farley, Research and Data Governance Lead, Global Genes and RareX
  • Jeffrey Thompson, PhD, Chief Research Informatics Officer, University of Kansas Medical Center
  • David Voccola, Senior Director, Global Strategic Planning, RWTS Integrated Health Practice, IQVIA
• Closing Comments
  • Jay Vivian, PhD, Program Lead Rare Disease Model Research Program, Children’s Mercy Research Institute